The public was powerfully moved by the recent New York Times editorial by Angelina Jolie, recounting her experience with BRCA testing and subsequent preventative mastectomy. Here at Reg4ALL, we were equally moved by a follow-up editorial by Allison London, who serves as the chairwoman of the Young Leadership Council for the Bachmann-Strauss Dystonia and Parkinson Foundation.
Allison, and thousands of others around the world, suffer from Dystonia, a painful and debilitating neurological disorder. But as Allison explains, you’ve likely never heard of dystonia; it has no celebrity spokesperson – you won’t hear about a telethon to fundraise for it, or a public service announcement that explains it.
As Allison explains, this is really important. Because a public figure generally raises awareness for the disease in a way that leads to increased research funding – and research breakthroughs are THE source of hope for so many people suffering from disease. This editorial is a sobering reminder for all of us that there are so many diseases that don’t receive much public attention, and yet need and deserve public support. Explore Reg4ALL today. Add your piece to the puzzle and move biomedical research forward to help ALL diseases.